Wednesday, May 18, 2011

One of my big dreams...maybe too big

Getting ready to go back to school, which got pushed back until August because of financial aide issues. I am super excited to be back in a learning enviroment and actually feel like I am heading in a positive direction.

My big dream is to open my own daycare that is more geared or equipt to deal with special needs children.I have worked in several daycares in the past and it always frustrated me to have families come in with special needs children and I knew that the daycare really wasn;t the right place for them. None of the staff other than me had dealt with special needs, changing tables were to high to lift children of that weight, no handicap bathrooms, I could go on and on. Most special needs kids only lasted a couple of weeks in every daycare. My dream is to fix all these problems and to have a place that is safe and nurtures tha needs of each child that comes through the door. I also think that typical children will also benefit from a place that focus on the needs of each child rather than just trying to fit every child into a mold.
So that is my big dream..not sure how I will get there or how long it will take, but I am going to try.

In other news...there is a huge hail storm out side...its super cool!

Sunday, April 17, 2011

Yay! for spring time!

As you can tell from me writting this..I survived that horrible flu infection killing virus thing. It took me almost two weeks but I did it :). We are still not sure exactly what it was or I came in contact with it, but I don't ever want it again please.

Here in CO, the weather has been fairly nice. Mostly 60's and 70's. Except for the snow on monday but that was only like an inch and it was gone by the next day. I am in love with sunshine and being outside. So is my dog who loves for me to run when I need her to come in every morning.

Still waiting for insurance to approve my night brace and without my doc doesn't want to order my AFO's. Did I mention how much I hate insurance companies? Hopefully I will here something this week. For now I just wear my temporary brace on my left foot because it is the worst of the two.

I registered for school in the summer, just waiting to see if I can start in may, all depends if financial aide is going to be approved.

Hope all is well with everyone :)

Tuesday, April 5, 2011

Something is trying to kill me...

This has been a hard two weeks. Last week I got a migraine that would not go away. Well Friday I was sitting at work playing with the girls(remember I am a special needs nanny) and I realized I was freezing. Which was really odd because it was 75 degrees outside and the house shouldn't be cold. I still had my migraine but that was normal for them to last for days. I decided to take my tempature and realized that it was 100 and I checked it an hour later and it was 103. After that it all went down hill. I got really sick and couldn't even stand up. The doctor gave me antibiotic 2000mg a day to be exact. I took them for four days until I woke up with a huge rash and feeling worse than ever! Yep I am allergic to all 2000mg of those antibiotics.

Today I feel a little better, I am at least able to sit up. So I am on day five of feeling awful and can't wait to get out of this stupid bed. So if you could pray that I get over this stupid thing soon.

Sunday, March 20, 2011

I did a guest post....check it out!

Cheryl who has a little girl named Jillian who has CP asked me to be a part of one of her CP interviews. It would mean a lot to me if you would check her blog out and check out my interview and let me know what you think. below is the link

Saturday, March 12, 2011 bad

The other day I was walking in the house and I heard this loud popping noise from my ankle. I didn't think anything of it because my bones pop a lot, something about my muscles moving my bones out of place or something like that the doctor says. Anyway, I was going to see my PT a few days after and I would just mention it to her and see what she thought. Well the next day after the popping noise occurred, my leg and foot started to hurt(I mean more than the normal pain). So when I went to see my PT she looked at it and told me that she was glad and a little freaked out all at the same time. I was confused by this but then she went on to explain and then I understood. She told me that I had torn ligaments in my foot! This is pretty bad because CP has affect this leg and foot so bad already that she is not sure how easily it will heal itself. The good thing is nothing is broke. She made me get a brace that I am not allowed to take off at all until I get my AFO's. She says that if I don't wear the brace there is an extremely high risk of creating a break just by walking :(

So to say its been a little bit of a busy week is an understatment.

In happy news, I am getting signed up to go back to college and get my business management degree :) Big dreams ahead for that!

Monday, February 21, 2011

The Girl Who Stopped Swimming -book review

I have always been a huge lover of books, lately I have started to enjoy this love again. Thanks to a friend I meet through her blog she shares all her favorite books with me, so I add them to my library list. The first book I added to my list was "The Girl That Stopped Swimming."

This was a great book with lots twists and turns to keep me interested. It is about a Lady named Laurel who lives with her husband and daughter in a quiet town. One day her a young girl is found dead in their swimming pool. This situation soon sends Laurels world into a tail spin. She chooses to contact her sister for help and in the process tests her marriage and brings to the services some long buried family secrets.

I think this book needs to be added to everyone's library list.

Friday, February 18, 2011

Coming clean...I am a complete jerk!

So last week after I wrote my post I just had a totally bad feeling. I call these "my way me" feelings. I try not to get them a lot but after talking to the doctors and PT, I was just kind of down. So this is where the why me feeling come in. Why do I have to have CP? Why can't I be a normal 26 year old? Why do I have to wear these braces for the rest of my life? and so on.. See I am a jerk, I know there are so many people who have it way worse than me and that I should be glad that I can even walk. See I feel bad even saying it. Basically I am sorry for my lame mood and poor thinking.

I went to my second PT appointment on Thursday. We worked on my hips and we talked about how my hip joints are shallow therefore not holding my hips in place. She heard them popping in and out and I explained to her that this was a regular accurence. For now I am going to do some hip excercises and keep an eye on things. I am going to get fitted for the night splint next week, the bad thing is my insurance doesn't cover it. I have no clue how I am going to pay for the thing. I was suppose to get one for each foot, but I still have a little movement in the right foot, so I think I am just going to get one for the left foot that has no movement for right now, since I don't think there is anyway I would ever be able to come up with the money for two. The Ankle and Foot orthodics that I will have to wear forever I get in a couple of months and hopefully insurance will cover those.

I will write a book review for you guys this weekend, so stay tuned for that.

Monday, February 7, 2011

First day of PT

Wow today was a long day. Good is that I really like my new Physical Therapist. Her name is Renee and she is around my age. She was super nice and didn't take everything so seriously. Which helps me because CP sucks it is as simple as that, so I need someone that is able to laugh and be as excited for my little accomplishments, and I think she is perfect for that.

So her idea so far is that I will do a lot of excercises. I will also wear a brace on both feet while I sleep and then I will have braces inside my shoes all the time that will stabalize my ankles. Hopefully this will make me stop falling so much.

My doctor wanted to take me over seizure meds for a little while, since I have not seizure for a while. I went without it for two weeks. Results - seizures return and the pressure in my head is lot more noticable. I am going to start taking it again, because I think it does me more harm to be off of it.

I am reading a new book that I love so I am off to read more...Hope everyone had a good monday :)

Saturday, January 29, 2011 do you re-train a brain you have had for 26 years?

I went to my neurologist yesterday to check on the results of the first Botox injections. I saw results the first couple weeks, but wasn't quite sure I was seeing a difference from then on. The Dr. says she sees a difference especially in the right leg and foot. My left foot has always been worse so she sees a difference but not as significant. I felt good that it seems like we are heading in the right direction, that is until I got the bill in the mail. Every time I get injections (every three month) it will cost me 500 dollars which is with insurance. Ouch!! I am a nanny, I don't make that kind of money! So I am not sure what I am going to do yet.

Our next step is doing extensive PT. The doctor says that my body can no longer handle the way I walk. I hardly put my heels down, walk on the sides of my feet, and do not make smooth transitions from one leg to another. So the PT is going to teach me how to walk correctly and retrain my brain to do things correctly instead of just adapting to what my disability allows me to do.

I am a little afraid of all of this and just a little down because walking seems so easy for everyone and it just isn't for me. But I will figure it out and then I will be the best walker that I can be :) LOL!

Wednesday, January 26, 2011

Almost done with January

This month wasn't good or bad...I will take it. LOL! Work has kept me really busy this month. Nannying special needs kids alway keeps things in perspective for me, I see what all of my kiddos have to deal with and I realize I don't have it bad at all.

I am not like my PT office. They have canceled on me three times already. The first time they schedule me with a person that has never dealt with someone that has CP. I was to scared to see them because I didn't want them to do something wrong (I felt bad, but I just didn't feel comfortable). So I called my neurologist and she recommended another PT office for me to call. I will call and try and make an appointment with them tomorrow.

I have an appointment to see my neurologist on Friday. She wants to look at my legs and see what the botox injections are doing. I am afraid I won't be able to get another more injections for a really long time because I just got the bill for my last injects and they cost me 500 dollars and thats with insurance. I just don't have that kind of money lying around.

I have a meeting with a school administration to talk about some options for a business management degree. I have been talking to people about the idea of opening a daycare type facility that is more geared toward special needs children. I always have big dreams :)

Hope all is well with everyone!


Monday, January 17, 2011

First cold of the

I am currently still working with two special needs families, which is fun but a little exhausting. Starting this week I cut down to only working with one. Great for my energy level, not so great from my bill payments. We shall see how that all plays out.

Its been almost three weeks since my first injections of botox. I notice a difference the first week and a half, but I am not sure if I see much difference now. I meet with my doctor next friday to see if she sees much difference. I also get to see my PT for my legs next monday, so we will see what he suggests. I am still walking on the sides of my feet and be in a fairly good amount of pain most the time.

I am currently battling a cold....kind of feel like I got hit by a very large truck. Work will be a little hard this week :)

I am working on some new drawings and paintings, maybe I will post pictures on here when I am done...I do it for fun....they are not that great lol!

Hope all is well.


Saturday, January 1, 2011

Well hello 2011

Wow where did 2010 go? Not that it was a great year or anything..but it went by super fast. This year I decided to not really make resolutions, but to really just live each day, no wait make that to celebrate each day. I realized this year that I have an amazing family and amazing friends (that includes you blogger friends).

How was everyone's Christmas? Mine was insanely busy, but fantastic none the less.

I had my first botox injections last week. Not to sound like a total wimp...but those thinks hurt LOL! The doctor did three injections on each leg. She said it would take a couple days to go into effect. I am not really sure what I am looking for really. I had to change my PT appointment to this coming Tuesday because we had a snow storm come through Colorado and I didn't feel like driving to it last week. So I am hoping this new PT will help tell me what exactly the botox effects look like.

How was everyone's new years? Do anything fun?

Love and hugs