Today is one of those days when I wish I could have just stayed in bed.
School is getting really hard, and having learning disabilities makes it about ten times harder than it is for a "normal" person. I failed my last two exams and I have another exam that I am not feeling so great about on Thursday. So if you have some good luck wishes you can spare...please send them my way:)
I meet my new OT today. I am a little nervous. I have a lot anxiety about meeting new doctors, I get tired of feeling like a science experiment. We are going to work on my hands first, because they are causing me the most pain and interfere with my life right now.
My brain is so exhausted right now. I will update you later on how my appointment goes.
Love ya,
Angela
Tuesday, October 5, 2010
Thursday, September 30, 2010
okay so I fell off the earth, okay not really
Sorry it has been forever since I wrote in this thing...things kind of get a bit crazy around here. so I will try to catch you all up in one blog with out boring you all to death.
lets see where to start...went back to college. Good idea? not so sure. I have been considering it for for a long time and I just felt like I wasn't getting any younger and I was tired of living pay check to pay check. The one thing I have always wanted to do is help kids with disabilities like mine. So I am working on becoming an Occupational Therapist Assistant. Due to my disability learning does not always come easy to me, this sometime makes school a little frustrating for me and sometimes I think I frustrate my teachers. I almost wish I had more supportive teachers, I don't think they like having the "disabled student" in their classes. Honestly I think they think I am not going to make it through the program and that I will make an awful OTA. But they don't understand how much I really want to help kids and how much I want to celebrate the little moments with them when they get to learn little things like tieing their shoes, how to jump, etc.... I can do this. Its my dream and I want people to realize just because we have CP doesn't mean we don't have dreams even though some of CP kid's don't talk they have dreams to!!! They need someone to believe in them and I will be that person.
okay next subject....CP update...stupid disease :)
So tired of hearing doctors say well your disease has no cure....blah blah blah! To which I would like to scream "Yeah well find ONE!" So I have been having issues with my hands now that I have been using them more in school with writing and typing. So the pain sucks right now and trying to figure out some solutions for that right now. On a brighter side I found a new neurologist that treats adult CP patients in CO. She is suppose to be one of the best in the United States. So hopefully she can help with seizures and all that fun stuff. That appointment is on the 20th so I will keep you posted.
In other news...my brother and his fiance are expecting a boy in February. Very excited to be an auntie again. My friend Sheri had surgery yesterday...so please pray that she has a speedy recovery.
Sending love and hugs your way,
Angela
lets see where to start...went back to college. Good idea? not so sure. I have been considering it for for a long time and I just felt like I wasn't getting any younger and I was tired of living pay check to pay check. The one thing I have always wanted to do is help kids with disabilities like mine. So I am working on becoming an Occupational Therapist Assistant. Due to my disability learning does not always come easy to me, this sometime makes school a little frustrating for me and sometimes I think I frustrate my teachers. I almost wish I had more supportive teachers, I don't think they like having the "disabled student" in their classes. Honestly I think they think I am not going to make it through the program and that I will make an awful OTA. But they don't understand how much I really want to help kids and how much I want to celebrate the little moments with them when they get to learn little things like tieing their shoes, how to jump, etc.... I can do this. Its my dream and I want people to realize just because we have CP doesn't mean we don't have dreams even though some of CP kid's don't talk they have dreams to!!! They need someone to believe in them and I will be that person.
okay next subject....CP update...stupid disease :)
So tired of hearing doctors say well your disease has no cure....blah blah blah! To which I would like to scream "Yeah well find ONE!" So I have been having issues with my hands now that I have been using them more in school with writing and typing. So the pain sucks right now and trying to figure out some solutions for that right now. On a brighter side I found a new neurologist that treats adult CP patients in CO. She is suppose to be one of the best in the United States. So hopefully she can help with seizures and all that fun stuff. That appointment is on the 20th so I will keep you posted.
In other news...my brother and his fiance are expecting a boy in February. Very excited to be an auntie again. My friend Sheri had surgery yesterday...so please pray that she has a speedy recovery.
Sending love and hugs your way,
Angela
Sunday, June 20, 2010
When it rains..It pours
So everything is going wrong...anyone surprised by this?
I went back to school in April to be an OTA...which is great I like the idea of being an OTA and helping kids that are like me. The program is really fast paced and is hard to keep up.
I have been having seizures more frequently. They scare the hell out of me and I really don't know what to do about them because obviously my meds aren't helping. My migraines aren't helping either, they are now lasting four days at a time. I am trying to get an appointment for this week to see the neurologist to see if I can try a new medicine.
On top of it all my best friend is mad at me...when really I thought I was doing what would cause less drama. My mom was sick so I decided to stay home with her instead of going to her party. Her boyfriend didn't want me there anyway or he would have invited me there anyway.
agh bad day
I went back to school in April to be an OTA...which is great I like the idea of being an OTA and helping kids that are like me. The program is really fast paced and is hard to keep up.
I have been having seizures more frequently. They scare the hell out of me and I really don't know what to do about them because obviously my meds aren't helping. My migraines aren't helping either, they are now lasting four days at a time. I am trying to get an appointment for this week to see the neurologist to see if I can try a new medicine.
On top of it all my best friend is mad at me...when really I thought I was doing what would cause less drama. My mom was sick so I decided to stay home with her instead of going to her party. Her boyfriend didn't want me there anyway or he would have invited me there anyway.
agh bad day
Thursday, April 1, 2010
Sleep...What is that?!?
My doctor keeps saying I need to sleep more. I keep asking him to help me with that, but nothing seems to help me. I think I sleep at most two hours a night. Sometimes I feel like I do my best thinking at night. Does anyone else think better at night?
I still have no clue what do about insurance. I checked into my Dad's cobra insurance it would cost me 300 a month which I just don't have at the moment, but may just have to figure out. I am not sure I can qualify for disability or even if I want to try. I spoke to the insurance company and they are looking into a few of the claims to see if they can actually cover them now. So everyone cross their fingers please.
Until my insurance is figured out I can no longer go to PT. Which sucks because I need someone to motivate me. Anyone want to send me an email each day yelling at me to do my stretches?? hahahah!!! I am not lazy, just get consumed by life and forget to take care of myself.
18 Days till school starts...getting very nervous
I still have no clue what do about insurance. I checked into my Dad's cobra insurance it would cost me 300 a month which I just don't have at the moment, but may just have to figure out. I am not sure I can qualify for disability or even if I want to try. I spoke to the insurance company and they are looking into a few of the claims to see if they can actually cover them now. So everyone cross their fingers please.
Until my insurance is figured out I can no longer go to PT. Which sucks because I need someone to motivate me. Anyone want to send me an email each day yelling at me to do my stretches?? hahahah!!! I am not lazy, just get consumed by life and forget to take care of myself.
18 Days till school starts...getting very nervous
Tuesday, March 30, 2010
Sunshine and Routines
This week seems to already seem really long. It is Tuesday and I am already ready for Friday. I have been fighting with insurance companies for months trying to get them to at least help pay for some of my medical bills. They keep stating that Cerebral Palsy is a "pre-existing condition". Here is the...it states in their policy that even if you have had the condition before you most be have been aware of it and received medical treatment for it. Cerebral Palsy wasn't even a thought until December of last year. I have had my current insurance since November. Hopefully everything will be straightened out soon because the bills are stacking up.
The sun was actually shinning today. It was beautiful and great to be outdoors. I took the little girl I nanny to the park. She loved going down the slide and swinging in the baby slide. I spoke to my PT and he said the best thing for me to do is to stay active. So I decided the walk to the park and back would do me good. I still have a hard time walking long distances (anything that takes longer that 15 minutes to walk). But I fill like my strength is getting a little better. Hills are still horrible for me, but I did one today.
I have to be honest and say that the routine of my job is getting really old. I am need of a vacation, but money will not allow that anytime soon. Hopefully starting school in April will help because it will change things up a bit and I will be working less.
How is everyone doing?
Love, Live, Laugh
Angela
The sun was actually shinning today. It was beautiful and great to be outdoors. I took the little girl I nanny to the park. She loved going down the slide and swinging in the baby slide. I spoke to my PT and he said the best thing for me to do is to stay active. So I decided the walk to the park and back would do me good. I still have a hard time walking long distances (anything that takes longer that 15 minutes to walk). But I fill like my strength is getting a little better. Hills are still horrible for me, but I did one today.
I have to be honest and say that the routine of my job is getting really old. I am need of a vacation, but money will not allow that anytime soon. Hopefully starting school in April will help because it will change things up a bit and I will be working less.
How is everyone doing?
Love, Live, Laugh
Angela
Thursday, March 25, 2010
Spring...Are you there??
So I swear it is suppose to be spring, then why is there snow outside my door?!? Why does Mr. Weather man state there will be more tomorrow? Oh Colorado weather you bother me so. Basically I walked outside and stepped on a patch of ice and hit my whole left side of my body on the concrete. Let's just say my body is not happy with me right now. Just a few bruises and scrapes, so I should be okay.
This Sunday is my Mom's birthday...I won't say how old she is on because she might kill me :). going to make her a cake it should be fun.
I took the little girl I nanny to her Occupational Therapist appointment today, she was so cute and totally showed off for me. She is starting to learn to eat on her own and I am so proud of her. She has really come a long way.
I got a new back pack for school, Yes I am adult and I should not get excited about little things like that, but I am starting a new career at a new schools so I need a new back pack :)
Love
Angela
This Sunday is my Mom's birthday...I won't say how old she is on because she might kill me :). going to make her a cake it should be fun.
I took the little girl I nanny to her Occupational Therapist appointment today, she was so cute and totally showed off for me. She is starting to learn to eat on her own and I am so proud of her. She has really come a long way.
I got a new back pack for school, Yes I am adult and I should not get excited about little things like that, but I am starting a new career at a new schools so I need a new back pack :)
Love
Angela
Saturday, March 20, 2010
I wanted an answer...right?
This is probably going to end up being more of a rant then an actual blog but hey it's my writting so I can do what I want LOL.
So after months and months of doctors appointments I get an answer, does it make things better? not exactly. I have Cerebral Palsy. Yep I said it, most people are diagnosed around birth aparently my doctors were idiots and either didn't know or decided my parents didn't need to know. Lovely, Right? Anyway, apparently they think during birth something happened that caused damaged to my brain so I have damage to my central nervous system. This causes my Nerves to not send messages to my muscles, making some movements hard and ackward. This makes sense and explains why I am definatly not like other people. I hold my hands differently, I have a little bit of a speech impairment, I walk on my toes or on the side of my feet...I could go on, but I don't feel like telling all my flaws today.
So where do I go from here...well I started Physical Therapy a couple of weeks ago, its a little weird for me knowing that I am learning how to walk correctly at 25 years old. Did you know writing the alphabet with your feet is actually working all the muscles in your feet? It does, give it a try. I am also on a new medication. So far my body is having a little difficult time adjusting to it, but I was warned that it would take about a month to reach its full benefits. So I will keep you posted.
In other news, I got to see my friend Bryce on Tuesday. His band Kill Paradise played a show...so proud of him. Even though it sucks cause he is never home. I start School on the 19th. I am excited but nervous. I am excited to start learning about Occupational Therapy and starting to help special needs kids.
Hope all is well.
So after months and months of doctors appointments I get an answer, does it make things better? not exactly. I have Cerebral Palsy. Yep I said it, most people are diagnosed around birth aparently my doctors were idiots and either didn't know or decided my parents didn't need to know. Lovely, Right? Anyway, apparently they think during birth something happened that caused damaged to my brain so I have damage to my central nervous system. This causes my Nerves to not send messages to my muscles, making some movements hard and ackward. This makes sense and explains why I am definatly not like other people. I hold my hands differently, I have a little bit of a speech impairment, I walk on my toes or on the side of my feet...I could go on, but I don't feel like telling all my flaws today.
So where do I go from here...well I started Physical Therapy a couple of weeks ago, its a little weird for me knowing that I am learning how to walk correctly at 25 years old. Did you know writing the alphabet with your feet is actually working all the muscles in your feet? It does, give it a try. I am also on a new medication. So far my body is having a little difficult time adjusting to it, but I was warned that it would take about a month to reach its full benefits. So I will keep you posted.
In other news, I got to see my friend Bryce on Tuesday. His band Kill Paradise played a show...so proud of him. Even though it sucks cause he is never home. I start School on the 19th. I am excited but nervous. I am excited to start learning about Occupational Therapy and starting to help special needs kids.
Hope all is well.
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