Wednesday, November 3, 2010

fall = cold time for me

I love fall weather, totally not a fan of all the germs around here. Since I started back in school I have been sick every other week. Bring on my plastic bubble please :) Currently I think I have an ear infection. Not sure I want to go to the doctor yet, may see if goes away in a couple of days. The next time I go to my new doctor I am going to talk her about how to boost my immune system, other than just taking supplements, cause I do that now. If anyone has any suggestions I would love to hear them.

So I never reported about my new doctor. Her name is Dr. Ene. She is a doctor and professor and deals with adults with CP. She seemed really nice and had a lot of ideas. One being counseling. She says that she can see I am having a difficult time with my disability and that it might help if I had someone to talk to. She asked me if I thought I would ever find someone to love me even though I have a disability...I told her no and she said I was wrong. Sometimes I don't tell people I date that I have CP, I just pray that they don't notice I walk funny or always have my hands in fists. Makes me sound really pathetic doesn't it.

The doctor increased my dose of Baclofen. She says that it will take about six weeks to take effect. So far I see no difference, its been 3 weeks. Baclofen also makes me sleepy, so I am not a fan. She also mentioned a surgical procedure that would but a Baclofen pump into me that would allow me to inject the medicine directly into my spine. This is suppose to make it work faster and keep it from going into my brain, which makes the side effect of sleepiness go away. The idea of surgery scares me, so she said there are a few other medications I can try before then. Opinions on this are welcome.

I can't wait until I have a break from school. Its not until December, but I am counting down the days.

Love and Hugs,


  1. Hi Angela! I'm so glad you went to the doctor and that you like her. For what it's worth, I know a girl with CP who gat a baclofen pump in her 20's and she said it was the best thing she's ever done. She said she didn't know she was always in pain until the pain went away. It helps her move better and feel better. It's really easy to adjust the doses and it was all around a great thing for her. I know it's not an easy decision, but wanted to let you know one person's experience. I wish you loads of luck with school and everything! xo

  2. I wish I had ideas for you in your tricky (and special!) situation. Good luck, though! You seem like such a neat person. I'm thankful to have met you through our blogs. I always love your sweet comments, too. THANK YOU!

    Love, Bree

  3. Tara thank you for letting me know about another person who has had the pump put in. I am still reseaching it and other meds I can try first. But I always welcome and value your input :)

  4. Bree- You are such an amazing person and mom! I love your family too. Thank you for stopping by my blog!

  5. Hi Angela...the only thing I can think to boost your immune system is eat healthy and make sure to get enough rest..It made me sad to think that you would ever think of yourself as not being able to be in a loving relationship. That is so untrue!! Disability shmisability!! Your words are lovely-therefore you are too..don't dismiss yourself-please. :)
    I hope that you can figure things out with your meds..I would be scared of surgery as well..It sounds like you have a wonderful Dr. I'm glad for that..:)