This month wasn't good or bad...I will take it. LOL! Work has kept me really busy this month. Nannying special needs kids alway keeps things in perspective for me, I see what all of my kiddos have to deal with and I realize I don't have it bad at all.
I am not like my PT office. They have canceled on me three times already. The first time they schedule me with a person that has never dealt with someone that has CP. I was to scared to see them because I didn't want them to do something wrong (I felt bad, but I just didn't feel comfortable). So I called my neurologist and she recommended another PT office for me to call. I will call and try and make an appointment with them tomorrow.
I have an appointment to see my neurologist on Friday. She wants to look at my legs and see what the botox injections are doing. I am afraid I won't be able to get another more injections for a really long time because I just got the bill for my last injects and they cost me 500 dollars and thats with insurance. I just don't have that kind of money lying around.
I have a meeting with a school administration to talk about some options for a business management degree. I have been talking to people about the idea of opening a daycare type facility that is more geared toward special needs children. I always have big dreams :)
Hope all is well with everyone!
Angela
Thanks for your comment, Angela! I wish I had a nanny!!! Since we just moved, I haven't started working again, and I'm dreading the search for childcare, especially for Addison! Nice to "meet" you! :)
ReplyDeleteTHANK YOU Angela!!! That is EXACTLY why Avery's school PT is driving me CRAZY!! Can she not see how damaging it is for Avery to be walking the way she does??? Insanity! I have a friend here in Roanoke who also has CP, and she walked until she was in her thirties, and then discovered that her gait had been doing serious damage to her spine. Bone spurs in her spinal column have meant that she's had to have a titanium rod put in, and that she's never going to walk at all again. She says she's doing a study with her neurosurgeon on exactly that topic - how forcing children with CP to actually limits them more in the long run.
ReplyDeleteHave you ever heard of Anat Baniel Method therapy? That's what we're doing with Avery now. I don't know whether it might be helpful for you or not.
Love that idea Angela. But make sure it's integrated -- typically developing and special needs. Inclusion results in the best outcomes academically, psychologically and emotionally for everyone... with and without special needs!
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