Wednesday, November 24, 2010

Gooble Gooble

HAPPY THANKSGIVING EVERYONE!!! I am so greatful my friends (that includes my blog friends) and family. I hope everyone has an amazing holiday and I will update my blog either this coming weekend or next week.

Love and hugs,

Saturday, November 13, 2010

Serious post time

Okay so its been a rough weekend and its only saturday.

On Thursday I woke up feeling really sick. My throat felt really sore and my chest hurt. Thank you who ever shared their cold with me (note the sarcasm). Anyway, I tried to stand up and I noticed that my legs felt like they weighed a million pounds and were really wobbly to stand on. I let it go thinking I was just really tired. I called into school and took it fairly easy for the day. Friday it got worse. I could stand on my legs at all. Any pressure on them sent pain through my body. My mom took me to the doctor who really didn't have any clue what it was. But said that she thought it had something to do with my CP. She put me on Lyrica and said to see if that helped. The other thought was that it could have been some of reaction to the flu shot mixed with my CP and medication. Not sure we will ever know the answer.

We need do x-rays and the one thing we did notice is that my hips are getting worse, it looks like bone is rubbing onto bone. So hip surgery maybe in my near future.

Anyway, here is where I need your opinion. My dream is to work with kids with special needs and I will never give up that dream. The problem is currently I am in school to be an Occupational Therapist Assistant. I really like it and I love the idea of helping kids in that way. The problem is I am not sure if my CP will allow me to do it. At this point it seems as things have been getting worse and doctors aren't really sure why. Can I really become an OTA or is it a dream that is way to far out of reach? How can I help a child if I am just as disabled as they are? Opinions please!

My other option I was thinking about was becoming a special education teacher...but its just thought at this point.

oh and my legs feel better today. I can stand on them, still a little wobbly but better.


Monday, November 8, 2010

Music is love

Best weekend Ever!! So for people that don't really know me I am a total music freak. A rock chick to be exact :)

My best friend Sheri and I went a concert to see two of my favorite bands Mayday Parade and Breathe Carolina. I love being at a show. No one cares that I am disabled. No one cares I walk funny, hold my hands funny or lose my words sometimes. I spent my night jumping up and down and singing at the top of my lungs. I felt free and like me!!

On to other news I need a new job...nanny job is ending soon :(

love and Hugs,

Wednesday, November 3, 2010

fall = cold time for me

I love fall weather, totally not a fan of all the germs around here. Since I started back in school I have been sick every other week. Bring on my plastic bubble please :) Currently I think I have an ear infection. Not sure I want to go to the doctor yet, may see if goes away in a couple of days. The next time I go to my new doctor I am going to talk her about how to boost my immune system, other than just taking supplements, cause I do that now. If anyone has any suggestions I would love to hear them.

So I never reported about my new doctor. Her name is Dr. Ene. She is a doctor and professor and deals with adults with CP. She seemed really nice and had a lot of ideas. One being counseling. She says that she can see I am having a difficult time with my disability and that it might help if I had someone to talk to. She asked me if I thought I would ever find someone to love me even though I have a disability...I told her no and she said I was wrong. Sometimes I don't tell people I date that I have CP, I just pray that they don't notice I walk funny or always have my hands in fists. Makes me sound really pathetic doesn't it.

The doctor increased my dose of Baclofen. She says that it will take about six weeks to take effect. So far I see no difference, its been 3 weeks. Baclofen also makes me sleepy, so I am not a fan. She also mentioned a surgical procedure that would but a Baclofen pump into me that would allow me to inject the medicine directly into my spine. This is suppose to make it work faster and keep it from going into my brain, which makes the side effect of sleepiness go away. The idea of surgery scares me, so she said there are a few other medications I can try before then. Opinions on this are welcome.

I can't wait until I have a break from school. Its not until December, but I am counting down the days.

Love and Hugs,